Dysautonomia community guide

Dysautonomia

A starting point for people with dysautonomia and their supporters to find community context and awareness resources. Needs and experiences are individual.

Shared language and awareness

Community resources

Community symbols and experiences can vary. These links point to organizations’ own awareness materials rather than reproducing their artwork.

Spoon Theory

Spoon Theory is Christine Miserandino’s metaphor for describing limited energy: imagine a finite set of spoons representing capacity across everyday tasks. People may prefer different language, so follow each person’s own description of their experience.

Read Christine Miserandino’s original Spoon Theory story

Awareness context

Dysautonomia International uses turquoise in its awareness activities. This describes one organization’s campaign, not a universal symbol among dysautonomia groups or individuals.

Dysautonomia International awareness activities

Find the organization’s awareness-month activities and ways to participate.

Explore Dysautonomia International’s awareness activities

Explore everyday tools

Browse the BendySpoons catalog by practical task context, and decide what fits your own needs.

Browse the catalog

A clear note before you browse

Independent picks, retailer purchase

BendySpoons is an affiliate catalog. When you follow a retailer link and buy, we may earn a commission at no extra cost to you. We do not sell products, process payments, or handle orders.

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